
Rare disease diagnosis is rarely straightforward. Symptoms don’t always fit neatly into a box. Data lives in silos. And for many patients and families, answers come slowly...if they come at all.
That’s why HealthVerity is bringing together research, patient experience and real-world data to explore how rare disease diagnoses actually come together. Join us for an upcoming webinar focused on the rare disease diagnostic journey, using Fabry disease as a real-world example.
What you’ll learn:
- How patients and advocates experience the rare disease diagnostic journey firsthand.
- Why rare disease data is fragmented across care settings and sources.
- How a real-world data use case brings those pieces together using Fabry disease.
Fill out the form to register for the webinar on Tuesday, February 24th at 12PM EST.
Can't make it? Register to receive the on-demand recording.
